Saturday, June 28, 2014

June 27 Post Four

Taylor took Thomas to her pediatrician following the teacher’s suggestion. She explained that Thomas had attended a half day nursery school program for the past year and the teacher felt medication was needed to reduce Thomas’ hyperactivity. Her doctor told her that the most common drugs used for ADHD are not approved by the FDA in children under six. He also felt Thomas should be evaluated for ADHD before any medication is prescribed. He recommended behavior therapy in conjunction with a strong routine and structured school program as a preferable course of treatment for a preschool age child like Thomas. ADHD medications in preschoolers have been known to cause more side effects, such as a decrease in appetite, insomnia and anxiety. Medication has been also known to slow the rate of growth in preschoolers. He suggested behavior therapy; along with a small preschool program which employs a behavior modification program to address behavioral issues in children like Thomas.
Taylor left the pediatrician’s office feeling somewhat relieved that he was not in favor of prescribing medication for children as young as Thomas. She really had not been comfortable with the idea of medication for Thomas. Taylor told the teacher what the pediatrician had said, and added that she had enrolled Thomas in Hoboken’s Universal Pre-K program for four year olds. The program was a free, full day program and offered special services such as speech or counseling, as well as special education programs should one be needed.
            This decision reduced the Hook’s financial burden of nursery school and child care. The savings enabled them to seek help from a behavioral psychologist. The psychologist took an in depth history and spent time observing and talking to Thomas. The psychologist felt that Thomas showed signs of anxiety which he stated were not uncommon in children with ADHD. He explained that excess energy turns to anxiety when unused. Other factors include mental stress and reprimanding. Thomas’ history reflected significant factors for mental stress, given his repeated hospitalizations and surgeries. His behaviors were cause for frequent reprimands by his parents and teachers. In addition, school can be a source of mental stress for many children. These factors combined with Thomas’ issues with communication caused by his cleft palate contributed to his mental stress and resulting anxiety. The psychologist agreed to see Thomas on a weekly basis. He offered the Hook’s suggestions for working with Thomas at home, and emphasized the importance of consistency when trying to modify behavior. One suggestion that was made was to provide Thomas with plenty of opportunity to exercise in order to burn off excess energy.
Thomas’ first year at the Hoboken’s Pre-K Program was an improvement over his nursery school program. The behavior therapy along with the suggested techniques the Hook’s had used at home were helpful in reducing Thomas’ hyperactivity. The school conferred with the behavioral psychologist and was able to implement some of his suggestions, in addition to their behavior modification program which rewarded positive behaviors and ignored negative ones. Although the Hooks still received reports of behavioral issues, they were able to work together with the school in managing Thomas at school.
            Thomas turned five and started kindergarten. His speech services continued with notable success. Thomas’ ear tubes had fallen out after six months, but the ENT chose to delay reinsertion to see if Thomas’ ear infections would return. He was cautiously waiting to see if Thomas had outgrown them.
                Given the fact that Thomas had been attending a kindergarten program for the past six months and continued to display ADHD behaviors, his psychologist wanted to perform various tests to verify the suspected diagnosis of ADHD. He requested that a CPRS-R (Connors Rating Scales-Revised) be done by the school. He also performed psychological testing to evaluate Thomas’ cognitive functioning. It is not uncommon for children with ADHD to suffer from academic issues in reading and/or math. The testing would also rule out any intellectual deficits. The Hooks were very much in favor of this testing since the teachers at school had made comments alluding to the need for Thomas to be evaluated for special education services. They pointed to his hyperactivity, inability to focus, his failure to complete tasks, and inability to share or take turns. These are all behaviors that are expected from a kindergarten age child. Due to his lack of focus, it was difficult to ascertain his academic skills. He would never finish reciting the alphabet or counting to a specified number. Writing tasks were often sloppy and incomplete. He demonstrated organizational issues as well.  Thomas’ cubby had always been messy and it took him longer than average to get his belongings together at dismissal.
                Taylor preferred that her psychologist perform this testing, since she had heard and read about the tendency for children like Thomas to be referred to special education due to behavioral issues.  Many referrals often result in 504 services rather than special education programs. Parents can obtain 504 or non IEP services by requesting them in writing to their district. In order to qualify for IEP services, a child’s cognitive functioning must fall significantly below his intellectual potential. If a student does not qualify as having a disability which significantly affects his academic performance, many of the services he can receive are through 504 not an IEP. Research shows that ADHD is identified in boys sooner than girls and boys have a greater incidence of being diagnosed with a disability than do girls.
When testing was completed, it revealed that Thomas had an IQ of 110, which denotes normal intelligence. Tests involving repetition of numbers were delayed. This could reflect an inability to focus in order to remember presented information.  Ability to copy shapes was below average. This could be a result of his lack of focus and tendency to rush through the activity, or can be a graphomotor issue. It was noted that Thomas failed to complete some of the items due to his short attention span and hyperactivity. The test had to be given in blocks of time over 2 days to complete many of the items required. Thomas’ lack of focus and hyperactivity made testing more difficult.
               After all the testing was completed, and the Connors Rating Scales –R was scored, it was determined that Thomas did have ADHD. Reports were forwarded to Thomas’ pediatrician and copies of the reports were given to the Hooks, who could share the results with the school if needed. Given that ADHD medication is not FDA approved in children under six, the decision was made to delay the administration of medication until Thomas turned six. This would coincide with Thomas’ entrance into first grade where the focus on academics is much greater than in kindergarten.  Thomas’ progress would be monitored in social, behavioral, and academic areas. Any signs of academic deficits could be better   assessed with the behavioral factors addressed through medication.

1) Are alternatives to ADHD medication just as effective as the medication?
2) Are specialized diets helpful in reducing ADHD behaviors?
3) Given the attention and focusing issues In children with ADHD, how accurate is the psychological testing?


Decision point- Do the Hooks agree to a special education program or do they opt for 504 services? What are the major differences between the two options?


http://www.ncbi.nlm.nih.gov/pmc/articles/             




Tuesday, June 24, 2014

June 24 Post Three

             Thomas has turned 3 and has continued to demonstrate improvement in his speech therapy. One issue associated with a cleft palate is ear infections which can result with an accumulation of fluid in the ears. Over the past year, Thomas has been to the pediatrician three times for ear infections with fluid in his ears. The Hooks were referred to their ENT, for frequent infections and fluid buildup can result in a hearing loss. Thomas underwent a hearing evaluation which revealed that his hearing was normal. The ENT explained that children with a cleft palate are prone to fluid collecting in their ears which is known as “Glue Ear.” Since Thomas has had these recurrent ear infections and fluid buildup, the ENT recommended a surgical procedure to insert tiny tubes called grommets. He stated that it will help to ventilate his ears and reduce the chance for fluid to collect in his ears. It could help reduce the chances of damage to Thomas’ hearing. He added, that the tubes tend to fall out after 6 months, and could require reinsertion. He also explained that ear infections are no longer an issue as the child grows older. The Hooks agreed to the procedure which was done in the hospital as an outpatient. In addition to the recurrent ear infections, Thomas had seen the dentist twice over the past year and required fillings in 4 teeth, some of which had dual surface involvement.
            During their last visit to the pediatrician, the Hooks brought up their concerns that Thomas has demonstrated an increase in ADHD behaviors. From squirming and an inability to cuddle, his parents have noticed an inability for Thomas to maintain an interest in any toy or activity for very long. He would run around the house and fall frequently due to what appeared to be clumsiness. It is not uncommon for children with ADHD to be accident prone due to their impulsivity. They act without thinking and consequently have more accidents than the average child (Web MD).
 Thomas also displayed problems taking turns when playing with his peers in the park. He would push his way onto the ladder of a slide instead of waiting his turn. Children with ADHD act on impulse and do not delay gratification. When they want something, they want it now. At this age, many parents of boys fluff this off as “boys will be boys.” They do not see it as a sign of a disability such as ADHD.
Given Marcus’ history, his son’s behaviors sparked concern. His parents took him to their pediatrician who told them that Thomas was still young and may outgrow this. Aware of Marcus’ history, he did add that if the behaviors continued or grew worse, Thomas may need to be evaluated for ADHD. He recommended that they enroll Thomas in a nursery school program to provide the training through experiences with peers in a structured setting. He suggested seeing how that goes and if there was no sign of improvement then bring Thomas back and he would provide them with a referral for further evaluation.
ADHD is difficult to diagnose. Doctors often rely on a family history, interview with child, reports from school, etc. Doctors are often too quick to diagnose a child as having ADHD so the Hook’s pediatrician is not discounting the ADHD diagnosis but feels further information is needed and had made a recommendation that would provide insight into another setting other than home.
The Hooks left their pediatrician’s office feeling conflicted. They were happy that he hadn’t dismissed their concerns and made suggestions for follow up. His recommendation for a nursery school program posed several issues. First, there was the issue of full day vs. half day, and then the resulting financial implications. A full day program would cost more and still require child care for the gap in time from when school ended to when they returned from work.  Half day programs cost less, but involved the additional cost of child care. Another consideration was whether Thomas at 3 years of age, could handle a full day program given his issues of impulsivity, and limited attention span. The thought of all this, along with the medical, dental, and behavioral issues that have plagued the Hooks over the past 3 years, left them feeling overwhelmed. Understanding the stress the Hooks were under, a friend from their church offered to take Thomas for a weekend, so that Marcus and Taylor could get away. They returned rested and were better able to consider their options and make a decision. They worked out an arrangement with their current child care provider, which reduced her time by the amount of time in the half day nursery school. They were also successful in finding an affordable program in their Hoboken community that would meet their needs.
Stress is experienced by all new parents who have to cope with the demands of an infant and the life style changes to their marriage. This is only compounded by having to deal with a first child who has a disability. Studies show that having a child with a disability can destabilize marriages and lead to divorce. Some parents refrain from having a second child due to the stress and strain it puts on the couple physically, emotionally, and financially. There is also the fear that it could happen again. Studies suggest that “raising a child with a disability decreases subsequent fertility, both by directly decreasing the likelihood of subsequent   childbearing and indirectly increasing the likelihood of marital disruption. Decisions to have another child are based on more than a first child with a disability, but on a variety of social and demographic factors, such as a woman’s age, race, social class, educational attainment, marital status, and labor force participation.” Positive factors for the Hooks were their community support, they were college educated, had jobs, and had reached an age of maturity when they had Thomas, as opposed to being teenagers. They were also a white middle class family.  Stress is higher among poor, unmarried minorities in disadvantage areas, who are unemployed and have a limited education (NCBI).             
The Hooks experienced some relief after resolving the issues with nursery school and child care. Thomas’ first year at nursery school was fraught with frequent reports from his teachers regarding his calling out, inability to share, and his inability to sit still. There were isolated episodes of temper outbursts when he was prevented from doing something he wanted.  The teachers were patient and made every effort to work with Thomas. They agreed to keep Thomas at the school and asked that Mrs. Hook speak to her pediatrician about possible medication to help improve Thomas’ behavior in school. Although there wasn’t a definitive diagnosis of ADHD, all of the reports from the teachers, Taylor experiences with Thomas at home, and the knowledge of a possible genetic component, all seemed to indicate that Thomas suffered from ADHD. There was a part of Taylor that feared her own drinking may have caused his ADHD. The idea that she could have caused this was devastating.
              The information available on the causes of ADHD provides numerous possibilities. There is no single direct cause. Some cases are believed to be genetic; some are alcohol or drug related, some are believed to involve neurotransmitters while other cases appear random with no apparent etiology. Treatment options include medication, psychological and behavioral therapies (Web MD).

1)    What ADHD treatment alternatives are available for Thomas?
2)    What role does diet play in children with ADHD? I.e. chemicals in certain foods
3)    Is a referral to special education for Thomas inevitable? Why or why not?


Decision Point: Does Taylor get medication for Thomas or does she decide to pull Thomas out of the nursery school program?

Friday, June 20, 2014

June 20 Post Two

When Thomas was born, besides the cleft palate, he seemed to be a healthy baby. He had all of the necessary reflexes. Thomas had the sucking reflex yet it wasn’t as strong as other infants his age. Because his cleft involves the hard palate, Thomas was not able to suck efficiently. The doctor informed Taylor that when she feeds Thomas, he should be held in a nearly sitting position during feeding to prevent the breast or formula milk from flowing back into his nose. In addition, Thomas should be burped frequently, approximately every three or four minutes (Children’s Health, 2014).

Around 5 weeks after birth Thomas was crying more than usual. This started to concern Taylor so she consulted Thomas’s doctor who told her that crying reaches its peak around five weeks after birth and it is the vital way Thomas communicates his feelings. Taylor is sleeping less and wants to know when Thomas will grow out of this stage of crying insistently. The doctor informs her that this crying rate will decline around four months because as the cortex blossoms, crying rates decline, and babies will only use this mode of communication selectively. The doctor also encourages Taylor to take advantage of when the baby cries to pick him up, and rock him to enhance the parent-child bond (Belsky, 2013).

Around 9 months Thomas started to show a delay of speech and speech sound development compared to typical children his age. He especially made grunt and growl noises which concerned Taylor. The doctor notified Taylor that these sounds represent a behavior that some children learn in attempt to compensate for velopharyngeal inadequacy which is the inability to close off the nasal cavity from the mouth. Thomas also started to have ear infections often due to a dysfunction of the tube that connects his middle ear and his throat. Since, recurrent infections can then lead to hearing loss. To eliminate any confusion, Thomas is taught English in the home so that he can properly learn the native language before he is taught Spanish. Being able to be
bilingual can be very beneficial for a child, but since Thomas already has a speech delay, Taylor thinks that it is more importantly to focus on learning one language correctly (Speech Development, 2012).

Because cleft palate causes many disadvantages within the child, Thomas’s parents decide to have cleft palate surgery at 12 months. Since there were no facilities nearby, Taylor had to take off work to travel to the Craniofacial center in Morris Town, NJ. The first surgery repaired the palate and involved palatal lengthening and drawing tissue from the left side of the mouth to rebuild the palate. Because of the procedure, Thomas had to stay three nights in the hospital, the first night in the intensive care unit. Taylor and Marcus decided to have the surgery done because of the benefits. This surgery created a functional palate and reduced the chances that fluid will develop in the middle ears, and helped the proper development of the Thomas’s facial bones. In addition, the functional palate helped Thomas’s speech development and feeding abilities. Because of the dysfunction in his oral cavity, Thomas’s teeth development was irregular. As a result of the abnormalities present, his teeth would eventually require orthodontic treatment.  Since Thomas has a cleft palate, he is more prone to a larger than average number of cavities than typical children and he has displaced teeth requiring dental and orthodontic treatments. The first dentist visit is usually at three years of age but because of the specific dental problems that cleft palate causes, Thomas was recommended to see a doctor at 12 months (MUSC, 2014).

Taylor and Marcus have similar religious views and are very involved in their church. This was a very supportive system present especially when Thomas was having his surgery. Since Taylor couldn’t take off much work, church members went and stayed with Thomas in the hospital after his surgery. Other church members made meals and dropped them by the house so that Marcus and Taylor didn’t have to worry about cooking. It is not easy putting your own child through surgery but this church family was a huge blessing and support for Taylor and Marcus during this difficult time. The church family also assist in transporting Thomas to and from speech therapy sessions because of the restricted schedules of Thomas’s parents. Although surgery helped with Thomas’s speech production, he also began speech therapy at one year and a half and has been making significant progress with his articulation and with his “s” sounds. Since Thomas is a part of the Children’s Health Insurance Program, his parents didn’t have to worry about covering the cleft palate surgery or speech therapy costs because they were covered under New Jersey’s CHIP program. Under the Benchmark-Equivalent coverage, the surgical and medical services, inpatient and outpatient were covered for Thomas. 

Around 2 years Thomas began to be squirmier, less able to cuddle, and required more attention. After researching, Taylor found that there are some signs in babies that tend to have a positive correlation with ADHD later on. ADHD doesn’t suddenly develop when a child reaches school age, but instead, most research shows a high correlation between genetics and ADHD. Most children, however, are not diagnosed with ADHD until past the age of 6 (ADHD 2014).

1)    What other coverage does New Jersey’s CHIP (Children’s Health Insurance Program) have that may be beneficial for Thomas?
2)    Thomas will develop a musical prodigy, at what age should the first signs of a prodigy appear?
3)    If Taylor and Marcus have another child, what is the likely hood of the child having a cleft palate?
4)    How long is the typical cleft palate surgery? And what is survival rate of this surgery?
5)    What is the relationship between parent/child attachment and later diagnosis of ADHD? Consult the literature.

Decision Point:

Does the family consult a pediatrician regarding Thomas becoming “squirmier, less able to cuddle, and requir[ing] more attention?” Why or why not?


References
ADHD in Children: Birth Through 12 Months. (2014). Remedy Health Media, LLC. Retrieved from http://www.healthcentral.com/adhd/raising-child-with-adhd-278672-5.html
Belsky, J. (2013). Infancy. Experiencing the Lifespan. New York: Worth Publishers .
Children's Health- Encyclopedia of Children's Health . (2014). Advameg, Inc.  Retrieved from http://www.healthofchildren.com/C/Cleft-Lip-and-Palate.html
Cleft Palate. (2014). Medical University of South Carolina. Retrieved from https://www.muschealth.com/gs/healthtopic.aspx?action=showpage&pageid=P01847

Speech Development . (2012). Cleft Palate Foundation. Retrieved from http://www.cleftline.org/parents-individuals/publications/speech-development/